Sawyer's new pain med helped a lot tonight. He is very tired, but much relieved. We are hoping that dialysis reduces his potassium level so we can go home tomorrow.
Although today has been challenging, we can’t help but recognize so many blessings and answered prayers.
Last night we asked everyone to pray for peace in Sawyer's heart. He was disappointed and concerned about the news of another surgery , but he enjoyed his bedside ice cream party and was calm on the way to the hospital this morning. He even kept his composure in pre-op. He never stays cool in pre-op. Typically, they have to sedate him right away, but not today.
When Sawyer first discovered the G-Tube on his belly, he had tears of sadness, but not frustration. Typically, he is letting everyone in the hospital know how frustrated he is, but not today. It broke my heart to witness his pain and disappointment, but I was grateful for the peace and strength I saw in him. Grateful for God's presence in the heart and mind of my boy.
We were blessed again today with top notch medical staff...
The skillful surgeon.
The post-Op nurse who cared so much that she visited Sawyer hours later.
The charge nurse who moved us into a private room.
Our renal doctor who is always amazing. She was there to greet and care for Sawyer moments after getting into his room. She intervened immediately after learning that the pain meds were being held up by some bureaucracy.
Kidney clinic staff who went out of there way to pay Sawyer a visit today.
Our PD nurse who is nothing short of Superwoman! She is one of Sawyer's greatest care givers and advocates. Today was another remarkable day of being in her care. We are blown away by the steps she takes to care for Sawyer and comfort him too.
Our genetics doctor, who is not feeling so well herself, stayed later today to care for Sawyer and steer us in the right direction.
We are blessed with incredibly caring friends and family. Thank you for all of the offers to help, the texts, email, calls, FB comments and prayers! God comforts and strengthens us through so many people.
4 comments:
WOW....isn't this so wonderful and especially to see so many people caring as they do and praying as they are.......Sounds like GOD covered the board to meet every need and looks like Sawyer accepted all he had no choice in and did it with a real brave heart. YEAH SAWYER !
Continuing to pray for Sawyer.
Has he had nurse Laura? She was such an angel for our older son. Yes, CHKD is AMAZING!
Glad Sawyer is in good hands...God's!
:)
JJ
My heart aches for you all. I do know how FAITHFUL GOD IS , in all situations <3
and so we pray without ceasing for the victory,joining in the privilege of going straight to the throne of grace for you. His blood covers every cell and detail. We love you and are standing on Abba's promises.Hallelujah
Diana DeBoe
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